Interesting on MTHFR; I have one good gene and one mutated gene for that. My last brain scan showed subpar activity in my cerebellum, which controls mobility. I’ve been challenged with that my entire life; now I know I am clinically clumsy!
So interesting! It's actually more common to have one mutation than you think. Any idea what your COMT is (slow or fast)? That has a lot to do with how we metabolize pharmaceuticals and more.
I’m very unknowledgeable about the subject but arrived here after putting “histamine intolerance” into the search bar. I’m currently really struggling with histamine overload, and I’m being referred to the long covid clinic of my local hospital next month. I already have rheumatoid arthritis, asthma, eczema and I’m finding this concoction of symptoms so debilitating. So I’m trying to research as much as possible prior to my appointment next month.
Interestingly, I was a child that really suffered with motion sickness as did my daughter. It’s fascinating that perhaps there are genetic predispositions at play.
Thank you so much for sharing your story, Rachel, and I'm so sorry you're going through this. The connection between autoimmune conditions (like RA), asthma, and histamine sensitivity is really fascinating. These conditions often share common inflammatory pathways, and when COVID enters the picture, it can amplify these sensitivities significantly.
The motion sickness connection in both you and your daughter definitely suggests some genetic factors at play. I've found that understanding these connections can be really empowering - it helps explain why certain symptoms seem to cluster together and points us toward more effective management strategies.
Before your Long COVID clinic appointment, you might find it helpful to start tracking your symptoms and potential triggers. In my experience, having this data really helps guide discussions with healthcare providers. MANY of our Long Covid symptoms are actually variations of dysautonomia caused by MCAS. Making that connection was life-changing (more like life-SAVING) for me.
I'll be sharing more about histamine intolerance, MCAS, and recovery strategies in future posts. Feel free to reach out if you have specific questions - this territory can feel overwhelming at first, but there are definitely paths forward. 💜
Thank you so much Jess, it feels good to at least know I’m not alone in this. I feel pretty broken at the moment, the fatigue on top of all these other symptoms feels like it has put my life on hold, I’m not working and it feels like all the joy has been sucked out of my life. So the sensible thing feels to piece as much info together as possible.
Keeping a diary of my symptoms is a fantastic idea, I have a few weeks before I’m seen so perhaps that will offer my practitioners some useful insight.
I really appreciate your response thank you and I’ll be sure to follow along 🙏🏻🥰
Interesting on MTHFR; I have one good gene and one mutated gene for that. My last brain scan showed subpar activity in my cerebellum, which controls mobility. I’ve been challenged with that my entire life; now I know I am clinically clumsy!
So interesting! It's actually more common to have one mutation than you think. Any idea what your COMT is (slow or fast)? That has a lot to do with how we metabolize pharmaceuticals and more.
No, I have no clue on that.
how do you get tested for mthfr?
I’m very unknowledgeable about the subject but arrived here after putting “histamine intolerance” into the search bar. I’m currently really struggling with histamine overload, and I’m being referred to the long covid clinic of my local hospital next month. I already have rheumatoid arthritis, asthma, eczema and I’m finding this concoction of symptoms so debilitating. So I’m trying to research as much as possible prior to my appointment next month.
Interestingly, I was a child that really suffered with motion sickness as did my daughter. It’s fascinating that perhaps there are genetic predispositions at play.
Thanks so much for sharing this info x
Thank you so much for sharing your story, Rachel, and I'm so sorry you're going through this. The connection between autoimmune conditions (like RA), asthma, and histamine sensitivity is really fascinating. These conditions often share common inflammatory pathways, and when COVID enters the picture, it can amplify these sensitivities significantly.
The motion sickness connection in both you and your daughter definitely suggests some genetic factors at play. I've found that understanding these connections can be really empowering - it helps explain why certain symptoms seem to cluster together and points us toward more effective management strategies.
Before your Long COVID clinic appointment, you might find it helpful to start tracking your symptoms and potential triggers. In my experience, having this data really helps guide discussions with healthcare providers. MANY of our Long Covid symptoms are actually variations of dysautonomia caused by MCAS. Making that connection was life-changing (more like life-SAVING) for me.
I'll be sharing more about histamine intolerance, MCAS, and recovery strategies in future posts. Feel free to reach out if you have specific questions - this territory can feel overwhelming at first, but there are definitely paths forward. 💜
Thank you so much Jess, it feels good to at least know I’m not alone in this. I feel pretty broken at the moment, the fatigue on top of all these other symptoms feels like it has put my life on hold, I’m not working and it feels like all the joy has been sucked out of my life. So the sensible thing feels to piece as much info together as possible.
Keeping a diary of my symptoms is a fantastic idea, I have a few weeks before I’m seen so perhaps that will offer my practitioners some useful insight.
I really appreciate your response thank you and I’ll be sure to follow along 🙏🏻🥰